Polyposis registries

Editor-In-Chief: C. Michael Gibson, M.S., M.D. [1]

Overview

WikiDoc Resources for Polyposis registries
Articles
Most recent articles on Polyposis registries Most cited articles on Polyposis registries Review articles on Polyposis registries Articles on Polyposis registries in N Eng J Med, Lancet, BMJ
Media
Powerpoint slides on Polyposis registries Images of Polyposis registries Photos of Polyposis registries Podcasts & MP3s on Polyposis registries Videos on Polyposis registries
Evidence Based Medicine
Cochrane Collaboration on Polyposis registries Bandolier on Polyposis registries TRIP on Polyposis registries
Clinical Trials
Ongoing Trials on Polyposis registries at Clinical Trials.gov Trial results on Polyposis registries Clinical Trials on Polyposis registries at Google
Guidelines / Policies / Govt
US National Guidelines Clearinghouse on Polyposis registries NICE Guidance on Polyposis registries NHS PRODIGY Guidance FDA on Polyposis registries CDC on Polyposis registries
Books
Books on Polyposis registries
News
Polyposis registries in the news Be alerted to news on Polyposis registries News trends on Polyposis registries
Commentary
Blogs on Polyposis registries
Definitions
Definitions of Polyposis registries
Patient Resources / Community
Patient resources on Polyposis registries Discussion groups on Polyposis registries Patient Handouts on Polyposis registries Directions to Hospitals Treating Polyposis registries Risk calculators and risk factors for Polyposis registries
Healthcare Provider Resources
Symptoms of Polyposis registries Causes & Risk Factors for Polyposis registries Diagnostic studies for Polyposis registries Treatment of Polyposis registries
Continuing Medical Education (CME)
CME Programs on Polyposis registries
International
Polyposis registries en Espanol Polyposis registries en Francais
Business
Polyposis registries in the Marketplace Patents on Polyposis registries
Experimental / Informatics
List of terms related to Polyposis registries

Polyposis registries exist for the purpose of understanding the genetic disease familial adenomatous polyposis. The registries provide a service to doctors for identification, surveillance and management of families and individuals with high colorectal cancer risk from Familial Adenomatous Polyposis (FAP) and Hereditary Non-Polyposis Colorectal Cancer (HNPCC). The Centers for Disease Control of the United States provides, royalty-free, Registry Plus software for collecting and processing cancer registry data compliant with national standards established by health professionals and regulators to understand and address the burden of cancer more effectively.

Polyposis registries have been used in numerous academic studies to assess morbidity and mortality of colorectal cancer related to FAP, and use of registry data has resulted in improved treatment and reduced mortality from polyposis-related colorectal cancer.

The University of Texas M. D. Anderson Cancer Center maintains an international list of registries related to hereditary colon cancer.

Some of the registries include:

North America

Steve Atanas Stavro Familial Gastrointestinal Cancer Registry (Mount Sinai Hospital, Toronto, Ontario, Canada)

Europe

St. Mark's Hospital Polyposis Registry (St Mark's Hospital Foundation, St Mark's Hospital, Middlesex, United Kingdom)

Asia

Singapore Polyposis Registry (Singapore General Hospital, Singapore)

See also

Familial Adenomatous Polyposis