List of cystic fibrosis organizations: Difference between revisions
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Latest revision as of 19:08, 4 September 2012
The following organizations assist people with or do research into cystic fibrosis, a hereditary disease affecting the lungs and digestive system, causing progressive disability and sometimes early death.
Australia
- Cystic Fibrosis Australia[1] (CFA), an Australian national organization aimed at raising awareness and education of cystic fibrosis through advocacy and research
Europe
- Cystic Fibrosis Trust, a UK charity providing research, information and care for people with cystic fibrosis
- European Cystic Fibrosis Society[2] (ECFS), a Denmark-based organization of clinicians and scientists actively engaged in CF research, care and collaboration
- Association Grégory Lemarchal, a French organization dedicated to information outreach and research for cystic fibrosis, named after the French singer and Star Academy winner Grégory Lemarchal
North America
- Canadian Cystic Fibrosis Foundation (CCFF), a Canada health organization funding cystic fibrosis research and care
- Cystic Fibrosis Foundation (CFF), a US non-profit providing the means to cure and control cystic fibrosis
- Cystic Fibrosis-Reaching Out Foundation[3], a US-based network of information and support for people with CF and their families
- Boomer Esiason Foundation, a US-based organization supporting research aimed at finding a cure for cystic fibrosis as well providing education and raising quality of life for people with cystic fibrosis, named after Boomer Esiason, a former NFL quarterback, whose son Gunnar has cystic fibrosis.
- Lungs for Life Foundation[4], a US-based organization focused on improving quality of life for people with CF through assistive services, education and research
- Elizabeth Nash Foundation[5], a US-based organization focused on research, education and patient support, named after scientist Elizabeth Nash
- National Cystic Fibrosis Awareness Committee[6] (NCFAC), a US-based group focused on increased public CF awareness through an annual national Cystic Fibrosis Awareness observance
- Rock CF Foundation[7], a US-based non profit organization that uses the arts, entertainment, fashion and fitness to increase awareness and raise funds for cystic fibrosis. Founded by Emily Schaller.
- Liv for a Cure[8], a US-based foundation dedicated to raising money for fight against Cystic Fibrosis.
International
- Cystic Fibrosis Worldwide[9] (CFW), an international network concentrated on increasing quality of life and life expectancy for people with cystic fibrosis
- CysticFibrosis.com[10], an internet information hub with support forums