Hemophilia B (patient information)

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What is Hemophilia B?

Hemophilia B is a hereditary bleeding disorder caused by a lack of blood clotting factor IX. Without enough factor IX, the blood cannot clot properly to control bleeding.

What are the symptoms of Hemophilia B?

The severity of symptoms can vary, and the severe forms become apparent early on.

Bleeding is the main symptom of the disease and sometimes, although not always, occurs if an infant is circumcised. Additional bleeding problems usually show up when the infant becomes mobile.

Mild cases may go unnoticed until later in life, when they occur in response to surgery or trauma. Internal bleeding may occur anywhere and bleeding into joints is common.

Symptoms can include:

• Bleeding into joints and associated pain and swelling
• Blood in the urine or stool
• Bruising

• Excessive bleeding following circumcision

• Gastrointestinal tract and urinary tract hemorrhage
• Nosebleeds

• Prolonged bleeding from cuts, tooth extraction, and surgery

• Spontaneous bleeding

Where to find medical care for Hemophilia B

Directions to Hospitals Treating Hemophilia B