Carcinoid syndrome (patient information)

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What is Carcinoid syndrome?

Carcinoid syndrome is a group of symptoms associated with carcinoid tumors -- tumors of the small intestine, colon, appendix, and bronchial tubes in the lungs.

What are the symptoms of Carcinoid syndrome?

Most carcinoid tumors have no symptoms. They only produce the syndrome about 10% of the time.

When symptoms do occur, they may include:

• Abdominal pain that comes and goes
• Bright red flushing of the face
• Diarrhea (may be explosive and severe)
• Heart palpitations
• Low blood pressure
• Wheezing

Sometimes symptoms are brought on by physical exertion, or eating or drinking things such as blue cheeses, chocolate, or red wine.

What are the causes of Carcinoid syndrome

Carcinoid syndrome is the pattern of symptoms sometimes seen in people with carcinoid tumors. These tumors are rare, and often slow growing.

Carcinoid syndrome occurs only 10% of the time, usually after the tumor has spread to the liver or lung.

These tumors release too much of the hormone serotonin, as well as several other chemicals that cause the blood vessels to open (dilate).

More carcinoid tumors are being diagnosed today than in the past.

How to know you have Carcinoid syndrome?

Most of these tumors are found during abdominal surgery.

A physical examination may show:

• Heart valve lesions
• Signs of niacin-deficiency disease (pellagra)

Tests may include:

• 5-HIAA levels in urine
• Blood tests (including serotonin blood test)
• CT and MRI scan
• OctreoScan (to identify most carcinoids and other neuroendocrine tumors)

Where to find medical care for Carcinoid syndrome

Directions to Hospitals Treating Carcinoid syndrome

Sources

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