Albinism therapy
|
Albinism Microchapters |
|
Diagnosis |
|---|
|
Treatment |
|
Case Studies |
|
Albinism therapy On the Web |
|
American Roentgen Ray Society Images of Albinism therapy |
Editor-In-Chief: C. Michael Gibson, M.S., M.D. [1]
Overview
Albinism is a condition that cannot be "cured" or "treated" per se, but small things can be done to improve the quality of life for those affected. Most importantly to improve vision, protect the eyes from bright lights, and avoid skin damage from sunlight. The extent and success rate of these measures depend on the type of albinism and severity of the symptoms; in particular, people with ocular albinism are likely to have normally-pigmented skin, and thus do not need to take special precautions against skin damage.
Treatment
The goal of treatment is to relieve symptoms and depends on the severity of the disorder.Treatment involves protecting the skin and eyes from the sun by reducing the risk of sunburn by avoiding the sun, using sunscreen and covering up completely with clothing when exposed to the sun. The sunscreen should have a high sun protection factor (SPF). Sunglasses (UV protected) may relieve light sensitivity, and glasses are often prescribed to correct vision problems and eye position. Eye muscle surgery is sometimes recommended to correct abnormal eye movements (nystagmus).
Sun protection
It is vital that people with albinism use sunscreen when exposed to sunlight to prevent premature skin aging or skin cancer. This poses a problem for those who cannot afford sunscreen, especially in regions with high exposure to sunlight, as in Africa. Special sun protective clothing and swimsuits are available and are a good alternative to excessive use of sunscreen.
Use of sunglasses and hats with wide brims can make the glare outside bearable. Other things that can help people with albinism are avoiding sudden changes of the lighting situation (switching the light on in complete darkness), using dimmable switches and adding tint to car windows or blinds to normal windows. Lights should be yellowish rather than blue and not point towards the usual position of a person with albinism (like their seat at a table). When possible, people with albinism generally prefer to have the light on their backs rather than face it.
Vision aids
Glasses and other vision aids, large-print materials and closed captioning, as well as bright but angled reading lights, can help individuals with albinism, even though their vision cannot be corrected completely. Some albinistic people do well using bifocals (with a strong reading lens), prescription reading glasses, and/or hand-held devices such as magnifiers or monoculars.[1] Contact lenses may be colored to block light transmission through the iris. Some use bioptics, glasses which have small telescopes mounted on, in, or behind their regular lenses, so that they can look through either the regular lens or the telescope. Newer designs of bioptics use smaller light-weight lenses. Some US states allow the use of bioptic telescopes for driving motor vehicles. (See also NOAH bulletin "Low Vision Aids".)
Although still disputed among the experts, many ophthalmologists recommend the use of glasses from early childhood onward to allow the eyes the best development possible.
Optometrists or ophthalmologists who are experienced in working with low vision patients can recommend various optical aids. Clinics may provide these aids on trial loan, and provide instruction in their use. [2] maintains a directory of low vision clinics.
References
- ↑ "Facts about Albinism". |first=Richard |last=King}}
- ↑ "The American Foundation for the Blind".