Amyotrophic lateral sclerosis: Difference between revisions

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* [[ALS Association]]
* [[ALS Association]]
* [[ALS Therapy Development Institute]]
* [[ALS Therapy Development Institute]]
==External links==
*[http://www.3reasons.org A Ride for 3 Reasons] One man's solo ride across America on a bicycle to raise awareness and money for ALS research. Includes his daily weblog during the ride and profiles of families and individuals living with ALS.
* [http://als.clinicahealth.com The ALS Advocacy Community] is the ALS Association's online community offering. Members can partake in blogs, discussions, social network and many other features.
*[http://www.alsa.org ALS Association]
* [http://www.als-project.com ALS-Project - Free communication software for people suffering from ALS]
* [http://www.alsforums.com/ ALS Support Group] ALSforums is an international online support group for individuals affected by ALS (Lou Gehrig's Disease).
*[http://www.als.net/forum/ ALS-TDF forums] are maintained by the ALS Therapy Development Foundation and focuses on answering scientific questions pertaining to ALS
*[http://www.als.net ALS Therapy Development Foundation]; see also ''So Much So Fast'' below
*[http://www.alswarriorpoet.com ALS Warrior Poet] Blazeman Foundation, founded by the late Job Blaise, the first person with ALS to compete and finish the Ironman triathalon.
*[http://www.alsa.org/patient/drug.cfm?id=46 Clinical Trial of Neurodex for Pseudobulbar Affect in People with Amyotrophic Lateral Sclerosis]
*[http://brain.hastypastry.net/forums/forumdisplay.php?f=77 BrainTalk communities] was one of the largest ALS/MND forums in the world but following a 2-month hardware failure is currently rebuilding its community.
*[http://www.build-uk.net BUILD UK] is for people affected by ALS/MND in the UK, but also has overseas members
*[http://www.dukealsclinic.com Duke ALS Clinic] The Muscular Dystrophy Association (MDA) has recognized the Duke ALS Clinic as one of its distinguished ALS Research and Clinical Centers.
*[http://www.extrahands.org Extra Hands for ALS]
*[http://www.lesturnerals.org Les Turner ALS Foundation]
* [http://www.lougehrig.com Lou Gehrig's Website]
*[http://www.misaoforacause.com Misao for a Cause] A t-shirt charity created by Misao Apparel, to help benefit those diagnosed with ALS.
*[http://www.patientslikeme.com PatientsLikeMe] is a telesocial medicine site which allows ALS/MND patients to record their symptoms and share information about treatments
*[http://www.alscenter.org Robert Packard Center for ALS Research at Johns Hopkins, a leader in ALS Research]
*[http://www.westcityfilms.com/smsf.html So Much So Fast]  A documentary about ALS and one family's race to find a cure; aired on [http://www.pbs.org/wgbh/pages/frontline/somuchsofast/ PBS's Frontline] in May 2007
*[http://www.hawking.org.uk/home/hindex.html Stephen Hawking's Website]
*[http://www.patrickobrienfoundation.org/ The Patrick O'Brien Foundation] A non-profit dedicated to promoting awareness of ALS, established in honor of Patrick Sean O'Brien - an artist diagnosed with ALS at the uncommonly early age of 30, who is chronicling his experience of the disease for a feature film.
*[http://www.waronals.com War on ALS] Official Site of Team Blazeman, founded in honor of the late Jon Blais.


== General Muscular Dystrophy ==
== General Muscular Dystrophy ==

Revision as of 17:15, 27 November 2012

Amyotrophic lateral sclerosis
Stephen Hawking, a physicist who has ALS.
ICD-10 G12.2
ICD-9 335.20
OMIM 105400
DiseasesDB 29148
MedlinePlus 000688
MeSH D000690

Amyotrophic lateral sclerosis Microchapters

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Overview

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Differentiating Amyotrophic lateral sclerosis from other Diseases

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Diagnostic Study of Choice

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Amyotrophic lateral sclerosis On the Web

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Ongoing Trials at Clinical Trials.gov

US National Guidelines Clearinghouse

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Directions to Hospitals Treating Psoriasis

Risk calculators and risk factors for Amyotrophic lateral sclerosis

For patient information, click here

Editor-In-Chief: C. Michael Gibson, M.S., M.D. [1]

Synonyms and keywords: ALS; Lou-Gehrig's disease; maladie de Charcot; upper and lower motor neuron disease; motor neuron disease


Overview

Historical Perspective

Classification

Pathophysiology

Causes

Differentiating Amyotrophic lateral sclerosis from other Diseases

Epidemiology and Demographics

Risk Factors

Natural History, Complications and Prognosis

Diagnosis

Diagnostic Evaluation | History and Symptoms | Physical Examination | Laboratory Findings

Awareness and fundraising events

  • The Ride For Life, founded in 1998 by ALS patient and former teacher Chris Pendergast. Chris and other ALS patients made a wheelchair ride from Yankee Stadium to Washington D.C.—a 350-mile journey. The ride continues annually and, in recent years, has centered on the New York Metro area. Their mission is to raise public awareness of ALS, help fund research, support ALS patients and their families, and provide the ALS community with the latest ALS related news, information and inspiration. Since 1998, Ride for Life has earned nearly 3 million dollars for ALS research and patient services.
  • Augie's Quest [2] was started by fitness pioneer Augie Nieto in cooperation with the Muscular Dystrophy Association after his diagnosis with the disease. Augie's Quest and ALS TDI entered into the largest private funding collaboration in the history of the disease, $36 million, in 2006. All funds raised through Augie's Quest events go 100% to ALS research.
  • The Walk to D'Feet ALS held annually by the ALS Association, where walkers raise awareness and money to fight and cure ALS.
  • Prize 4 Life, a group of recent Harvard Business School graduates founded Prize4Life, a nonprofit to turbo charge ALS research because one or their classmates, Avi Kremer, MBA 2007 and Chairman of Prize4Life, was diagnosed with this fatal illness in the fall of 2004. Prize4Life is a results-oriented nonprofit founded to accelerate ALS/MND research by offering substantial prizes to scientists who solve the most critical scientific problems preventing the discovery of an effective ALS/MND treatment. The Prize4Life concept is inspired by other prize awards for stimulating research, such as the X-Prize for commercial space travel and DNA-decoding, the U.S. government’s H-Prize for hydrogen renewable energy, and Eli Lilly’s venture, InnoCentive, which outsources difficult R&D problems to a distributed network of scientists using prizes.

Related Chapters

General Muscular Dystrophy

This article incorporates in public domain text from The U.S. National Institute of Neurological Disorders and Stroke

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